Welcome to Johnny's Blog. Just because Johnny has passed doesn't mean he lost the battle against cancer, Mike and I are not only going to continue the battle but we will also WIN! GAME ON cancer!
Tuesday, August 19, 2008
Julie and I just had a very difficult discussion with Dr. Dryer and Dr. Muscal. Johnny is not responding to the chemo protocol, and his WBC is rising again quickly. Unfortunately we are just as quickly running out of treatment options. Johnny has been through so much these last three months, and both doctors said it would be understandable if we chose not to put him through any more, and just try to make him comfortable. On the other hand, Johnny is still alive, and as long as he is Julie and I would like to give him every chance possible to stay that way. This is really the answer the doctors were looking for, and I could tell there was some relief knowing that we were not ready to give up. There is really only one last drug to try; Clofarabine. This is the drug of last choice because it is very toxic, and is very hard on the bone marrow. Children have died from infections and other complications caused by this drug, but about 20-30% of the kids who get it go into remission. Those odds don't sound good, but his odds of surviving without this treatment are zero. Johnny's WBC is heading up quickly, so he will begin five days of treatment with this drug starting tonight. We should know if it is having any impact within a day or two. If it has the intended effect Johnny could go to transplant within the next two weeks. Complicating the matter is that during that time they will also have to clear his spinal fluid of any blasts. Johnny may be able to go to transplant with some residual cancer in his marrow, but they will not allow a transplant if he still has cancer in his spinal fluid. Everything we are doing at this point is in the attempt of knocking the leukemia down long enough to get him to transplant. The odds are not on his side, but Johnny has continuously surprised everyone with his strength and resiliency. Lets pray he has at least one last surprise up his sleeve.