Lazy Day

Johnny was up pretty late with the move to 911 not happening until midnight. He got his last dose of ARA-C after that, so I'm not even sure what time he fell asleep. I nodded off while watching the WQS contest on the computer, and that didn't even start until 2am our time (it's in France). When I fell asleep Johnny was still watching because his buddy Mike Losness was doing really well. When I woke up around 9am this morning Johnny was already awake (or maybe still awake), but that didn't last long. He needed blood, so as soon as they gave him the pre-meds he was out like a light. After that he slept straight through until after 6pm. It was a pretty gloomy day outside, so it was a great day for sleeping. It is much quieter, and less hectic up here, so I think he was also catching up on the sleep he missed while in ICU.

Not much change in Johnny's counts today. He did need blood, both platelets and red, but the WBC has been around 18 for the last couple of days. His blast count hasn't changed much either. The doctors still think that eventually his WBC will go down to less than 1 because of the chemo he just finished, but for now his organs are still releasing the white cells that were plugging them up so the counts are bouncing around a little. Today was uneventful, which is a nice change of pace. I'm hoping that in the next few days Johnny will start feeling a little better, and we can start trying to get him out of bed a little. He is really weak, and has lost a lot of muscle. He needs to be stronger than this when he goes to transplant. I'm also going to work a little harder on him to eat something tomorrow. I haven't wanted to push him too much because he's been throwing up what he has eaten, but he needs to start getting his gut working. Again, he is going to need to build as much strength as possible during this down time in the chemo protocol so he can be prepared for what's coming.

MR