Yesterday we didn't see Johnny's Hem/Oc doctors until around 9pm. When I commented that the visit was a little later than normal Dr. Kilbourn's response was "Fortunately Johnny's not one of our sicker kids right now." That's a pretty nice change from the last couple of weeks when the doctors were visiting Johnny early and often. When the visit did happen it was pretty uneventful. We almost didn't have anything to talk about. Johnny's last spinal tap still showed a couple of blasts, so he will be getting another one this morning. Then another one on Thursday. He will continue to get spinal taps until his spinal fluid is clear of blasts and white cells, and then he will get two more for good measure. His labs from last night showed his WBC is a little higher at 28, and his blast counts are a little higher also at 74%. Not sure what's going on there yet, because both of those counts should be trending down, but his doctors will be watching them closely. Right now there isn't much that can be done, because he has already gotten all of his chemo, and needs some rest from the drugs for a while.
Johnny is still really weak, but we did take a short walk in the hall yesterday evening. He did well, but needed to hold on to me the whole time. He also got pretty winded, but it's just a start. Today we will try to go a little farther and see how he does. Because Johnny has been getting blood during the day the pre-meds have been causing him to sleep a lot, so he stills has his days and nights mixed up. If that keeps up he won't have any problems staying up late to watch Mike in the next contest in France that starts tomorrow (tonight maybe).
MR
2 comments:
Hello, My name is Brandon Brookshire - myself and Mike Niemann have run the Surfhouse Turkey Jam for the past 5 years or so. We donate all the proceeds we make from t-shirts, entry money, and raffle tickets to a charity each year - the last 3 years have been for the park in Downtown Houston. Now that dream is realized, we felt helping out Johnny and his family would be great as we are going to have the 25th anniversary of the Turkey Jam at the Jamail skatepark this year. We feel that we can increase the size of the contest as well as get much more publicity in order to raise a very good amount of money. If at all possible, could you contact myself or Mike and let us know if this is acceptable for you. Our email addresses are:
BrandonBrookshire@msn.com
Niemann1@swbell.net
Thanks for your time and best wishes to all of you!
Brandon
Everyone at Oppe sends their love!! Love, Aimee
Post a Comment