Thursday, August 28, 2008

Tachycardia

A case for working out:  When Johnny relapsed he was in pretty good shape.  He got some form of exercise almost every day, and when we first settled in to this hospital stay many of his doctors and nurses commented on how low his resting heart rate was.  While sleeping his heart rate regularly fell into the mid 30 beat/minute range, and while awake he would be in the 60s.  I guess for a kid his age this is really low.  All that conditioning has really paid off.  When Johnny had his first bacterial infection I remember how frightening it was to see his heart rate in the 160s.  When he got his second bacterial infection it went to 200 when his fever hit 106.  Both of those episodes were short lived, and as soon as the infections and fever were under control his heart rate dropped.  It never got back to normal for him, but it dropped into the 70s/80s.  Then he got AML.  When his WBC first spiked several weeks ago his heart rate jumped up into the 180s/190s and stayed there.  For days on end.  Even now that his white cell count has dropped to less than 1 his sleeping heart rate is in the 150s.  For weeks now his heart has not beat slower than 120 beats per minute regardless of fever or white count.  This is probably another side effect of the chemo used to fight the AML since many of these drugs can have a negative effect on the heart.  The cardio team just completed a 24 monitor of his heart functions and we should have the results in a few days.  Their immediate impression is that his heart is still functioning properly, and does not appear to be damaged.  It's just going really, really fast.  I'm just glad its beating, but I do hope it slows down a little.

Today was relatively uneventful.  Johnny is on morphine for the pain in his hands and feet, so he slept most of the day.  It does look like all of the drugs are starting to cause some liver problems, so the doctors and pharmacists are trying to work out a program that might be a little easier for him to handle.  He also spiked a fever this evening.  Nothing has grown in any of the cultures, so he may have a virus, or it may just be because of the pain.  All of his labs were good, and his WBC was down to .03!  

Onward,

MR 

7 comments:

maaku aren said...

hi, a few years ago i was on adavan.
i remember when it would start
to wear off my heart rate would
really start to race. maybe alter-
native to that drug? not sure
just trying to help.

Anonymous said...

little bro!!!your doing great man.wish i could get up there and see you but with school having started i cant :(
but hey,i got your shirt and hoodies today and let me tell you.
THE WHOLE FAMILY ABSOLUTELY LOVED THEM!!!they are the most badass shirts and hoodies we have ever owned!!!!
you keep showing this thing what your made.superman only had one weakness,kryptonite.
your weakness is not this crap your dealing with right now.cause superman wouldnt have lasted anywhere as long as this.YOU ARE THE TRUE SUPERMAN!
SUPERJOHNNY!!
LOVE YOU MAN AND WILL COME VISIT THE FIRST CHANCE I AM ALLOWED IN YOUR ROOM.PROMISE

BIG BROTHER HEATH

Anonymous said...

Dear Romanos,

We are continuing to pray for you all! Praying for Johnny's heart rate to drop and tests to come back with no damage. Also, praying for the fever to go away. May God do a miracle in Johnny and bring you all comfort, peace and continued hope. He is Big God and with Him ALL things are possible! Yea!

Love,
The Sticklines

Anonymous said...

Onward!!

Rhonda wes and crew --

Anonymous said...

Pulling for you everyday!

missy

Anonymous said...

Here in Colorado with my dad. Knee Sx so he can continue to beat his kids on the slopes and the tennis court. I read him all the blogs and he has his whole church on the pray for Johnny and the Romano Family kick....Good hearts beat fast. Its all that love he has coming his way. Looking at my "johnny kicks cancer" bracelet and explaining it to every one who asks. The world will be thinking of you all if I can help it. Hang tight....yall are almost there. I read in a holistic newspaper today that since viruses are anearobic highly oxygenated blood will help eliminate them. Green vegtables have a lot of oxygen becausethey are in the midst of photosynthesizing. I don't know if Johnny is actually taking in food orally but anything that might help :) Love yall---Melinda

Mike Rogers said...

Johnny

you are kicking butt on cancer keep it up. iam sorry you have to go through so much my friend.

Mike Rogers