A lot of people think Johnny is special, especially us -- but it's hard for Mike and I to wrap our heads around why he was so special to complete strangers. He has that sparkle in his eye that always came through and touched everyone he met. Chicks love him.
I distinctly remember his kindergarten open house with Mrs. Tucker (she had Joey a few years earlier, so she probably thought Johnny would be a snap...) -- she pulled Mike and I aside and with a very serious tone told us "He's probably the smartest child I've ever had in my class, but you will never know it by looking at his report card (mostly B's and a few C's). In all my years teaching, I've never seen anything like this before, the girls fight over who will sit next to him during circle time and who gets to do his school work. And he lets them do it too!! I just had to put a stop to that right away, because he can't rely on women to do his work, he needs to learn to be a man..." Mike and I got the biggest kick out of what Mrs. Tucker said that night.
Obviously he was special way before he was diagnosed.
I felt the amazing moment Johnny was conceived. He was born on his due date. When I was giving birth to Johnny my epidural wore off so I also felt the incredible moment he was brought into this world and it was the most amazing feeling ever -- it literally didn't hurt and I instantly told Mike I wanted to do it again. After the nurses scooped Mike up off the floor, he told me to wait a few years before we made that sort of decision. Johnny was our only baby we didn't find out the sex before he was born -- and we were convinced he was a girl. We were so sure we had a ton of girl names but only a few boy names. Just a few hours before we left the hospital we decided to name him Jonathan Michael Romano.
His favorite all-time movie is Peter Pan. Mike's mom used to ask him when he was about 3 and 4 years old, when he was going to be a big boy, he always told her "I don't want to be a big boy. I don't want to grow up!" He loved being a baby (and loves babies) and still drank out of sippy cups -- not the kind with the plastic thing inside to prevent drips and they didn't have handles, but they still had lids and resembled the sippy cup style.
He wore bathing suits 24/7 until about the 3rd grade. When we met families who had pools I told them Johnny wasn't trying to throw hints -- he just likes to wear trunks -- even during the winter. The only way we potty trained him was to take away his trunks. It took all of about 30 seconds and viola! No more diapers! He loved to go commando.
Johnny was diagnosed on Thursday, May 26, 2005. When he relapsed and started treatment, and was readmitted because of sepsis it was May 26, 2008. He started and ended his 121 day stay at TCH in ICU. He passed away in our arms on September 23, 2008 which was supposed to be the last day of treatment had he not relapsed. He was buried September 27, the day Galveston declared it "Johnny Romano Day!".
It sounds to me like he had this whole thing planned. Just wish he would have consulted us beforehand... I miss him so much. I feel blessed I was chosen to be his mommy, even if his visit was only to be a short one.